EveryLife Foundation for Rare Diseases

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Online tools to write your
Congress Member
Latest news from the
Rare Disease Congressional Caucus
www.RareDiseaseLegislativeAdvocates.org

Workshop #3 Nov. 8-9, 2011

Use of Surrogate Endpoints in Rare Disease Treatment Development
Click here to register

Click to view presentations from Workshops #1 & #2

Sunday, January 8, 2012
Starlight Room, San Francisco
Click to Purchase Tickets

	The Potential Investment Impact of Improved Access to Accelerated Approval on the Development of Treatments for Low Prevalence Rare Diseases by B. Miyamoto & Dr. Kakkis Orphanet Journal
	Dr. Kakkis' Response to the JAMA Article on Rare Cancer

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